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Day 103

Why'd the Weekend End?

The walk for HD Awareness was amazing and emotional. There wasn't a huge turnout because the disease is so rare, and so few know about its existence, but it was enough. I put a bid on a wine basket and won! But the woman who is supposed to be scheduling with me for me to go pick it up has been silent... Oh well. Honeybun was feeling a lot of emotions, so we distracted ourselves by loving on the giant Irish Wolfhounds. Those dogs are so massive! I'm not the tallest person around, but my god both dogs could've swallowed me whole if they weren't such cuddlebugs. I'd love to have a pet werewolf of my own one day, but I can't imagine how much those lovely beasts eat!

We collected much information about HD support groups and medical studies Honeybun could participate in, and we signed up as volunteers for the next event. I'll be able to put my event organizing skills to a good cause. We both cried and discussed our future again. We ended the day by taking my best friend's kayaks out on the water at home and just... being. It was lovely.

Show Comments (3)

  • RavDiablo RavDiablo
    5 weeks ago

    So glad you're doing this type of volunteering; one of my favorite songwriters, Woody Guthrie, died of HD (they used to call it Huntington's Chorea, because of the strange "dances" that those afflicted did as they attempted to move around.) Good luck to you two.

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  • Otter Otter
    5 weeks ago

    I remember reading that about Woody Guthrie when Honeybun first brought up HD to me. Honeybun's grandmother "dances" so often now that she usually throws anything in her hands by accident. We didn't talk about it much for a while, because it's a difficult subject. Who want's to think about a monster you can't win against? But it's hard /not/ to think about it when half your small family has it and the other half is still Schrodinger's cat. Honeybun was driving himself to depression over not being able to do anything about it. So, we're doing something about it. :) Thanks, Rav.

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  • RavDiablo RavDiablo
    5 weeks ago

    I'm so sorry you have to deal with this. In my family, it was the BRCA gene that took my mother, her mother and both of my sisters. I was tested to see if I was a "carrier" - that is, if I could pass it on to my children. Tears came to my eyes when the geneticist said to me, "you don't have to be nervous any more...."

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